Monday, April 27, 2009

sleep, and other non-essentials

My poor blog is sadly ignored these days - so sorry, reader! I am finding my schedule to be more and more difficult to keep up with, but there aren't any frivolous things I can cut out.

Also, I've recently been diagnosed with Moderate Obstructive Sleep Apnea. For the past three years, I have been so tired and also have had difficulty losing weight. The first time I mentioned it to my doctor, she actually laughed! She laughed and said "honey, we're ALL tired and fat! This is America!". Well. I didn't pursue this with my doctors, but each time I went for something else, I mentioned how tired I was - and how healthy I was eating and seeing no results. The answer was always the same -- I was doing too much, I was stressed, I needed to slow down. It's legitimate advice - after all, I've opened two businesses in the past two years. Still.

I was convinced something was wrong with my thyroid. Although the original tests showed nothing, the research I've done shows that the most common tests for thyroid sometimes don't catch the problem. Recently I've changed doctors to a young, hip guy. He wouldn't do the more extensive thyroid test until I agreed to a sleep study. Um, okay. I sleep about 10 hours a night (yes, TEN) and still wake up tired. Sleep isn't my problem, being tired AFTER I sleep is my problem! I was just waiting for the results so I could actually get the tests I wanted.

Well, the results came -- I wake up between 25 and 45 times an hour - yeah AN HOUR - depending on what stage of sleep I'm in. Yikes. No wonder I've been so tired!! So now begins the long process of feeling better. First I had to wait 3 weeks for those results. Then I had to go back in for another overnight study where I wore a face mask and they tracked data to see what kind of air pressure relieved my symptoms. Now I wait another three weeks for the doctor to analyze that data, before driving down to San Jose (again) to talk with her about the results.

Then, and only then, can I get the prescription for the mask and machine I will wear while sleeping. Most people say it takes about 3 weeks to get used to wearing it, and that's only if you've gotten the right mask for your face, etc. So I'm about 6 weeks off from good sleep. I've been exhausted for three years now. I've been just pushing through it because I figured everyone was right, I just did too much. Now that I know what it is, though, I'm not really coping very well. I want relief, like now. Tonight. At the same time, I'm a little sad at the prospect of a nighttime face mask for the rest of my life. It will be a journey, that is for sure. One that I hope ends with feeling like a normal person again.

2 comments:

Kathryn said...

All I can say is try to tune into the joyousness of having some kind of diagnosis! Even if it is one that will last a lifetime. Have you done extensive research about other types of therapy?

There's got to be some kind of less-invasive more down-home way of helping...a face mask does sound kind of awful as a long term solution...

Emily said...

Yes, you now know what it is. Maybe the mask won't be a big deal and maybe if you're feeling more rested, it'll totally be worth it. I agree with Kathryn, maybe you can find a better long-term solution?